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 On the Wings of Prayers

On November 12, 2004, my life changed forever.  It wasn’t a car accident or disease; it was a light bulb.  I simply went to work one day attending a teacher in-service training in the gymnasium at Bryant Elementary School in Lake Oswego.  Unbeknown to any of us there at the time myself and several of my colleagues were seated directly underneath a broken Type “R” metal halide light. These lights are commonly used to illuminate school gyms, box warehouse stores, convention centers, airplane hangars, barns, and other large spaces. The environmental studies that followed said we exceeded a full 24-hour UV radiation exposure every 8 minutes while in the gym.  We were there approximately 5.5 hours giving us an UV exposure equal to 41 consecutive days.


The radiation burns were to our eyes and any exposed skin including hands, faces, and necks. The following two years consisted of 24-hour pain and extreme light sensitivity. There have been well over a hundred doctor appointments, days and nights of having my eyes taped shut, punctal plugs, albumin treatments, and countless regimes of eye drops.  Any activity that required me to go outside meant dark sunglasses, a black visor, and a black umbrella.
 

Having exhausted all other options in November of 2006 my doctor removed me from school and confined me to our home for six months with the hopes that limiting light exposure might aid in healing.  I felt as if I was walking to my own funeral as I said good-bye to the children in my class and walked out of the school that day with my husband literally holding me up.  I was allowed out of the house once a month for an hour to go to the eye doctor and then returned straight back home. We hung brown parcel paper over windows to limit light.  Our Christmas tree had to be unplugged.  I was no longer allowed to go to church, but was blessed by being able to listen to the sermons on line. My small group graciously changed locations to our house so that I could continue to study and pray with them.  I’m convinced that one can only survive these living conditions with faith in a God that is so much bigger than any current circumstances, prayer, and the help of friends and family.


In April of 2007 AP Press wrote a story about the danger of these lights and our accident that was picked up by 108 news agencies worldwide.  We received a phone call from a Christian woman who had read the article in Arizona.  She shared that her son had radiation burns to one of his eyes from cancer treatment.  He was able to get relief at the Boston Foundation for Sight.  This was something that my husband Joel had uncovered and we had looked at the summer before, but at the time we were still hopeful that I would heal.  The same woman and her son followed up a few days later with an offer to combine their airline miles to help get me to Boston.  It is important to keep in mind that these are people I have never met. Little did I know, the miracles were just beginning.


After reviewing this treatment option with my doctor and the doctors  at the Boston Foundation for Sight we decided to walk forward in faith.  This was our last hope.  The looming alternative was a permanent disability.  The doctor’s in Boston were quite clear they had never treated this type of radiation exposure before, but had been successful on 3-4 other attempts with different sources of radiation.  The other step of faith was financial.  SAIF (Oregon’s  Worker’s Comp.) hadn't decided if they would pay or not.  We put everything on our credit card.


While preparing to head to Boston we were surrounded in love and support.  We had six offers of people willing to give their frequent flyer miles to help get me there.  This included parents of children that I had taught in the past, but hadn’t had their child in my classroom for two years.  A special friend that was unemployed sent me a check for $20 and said, “Have lunch on me in Boston.”  Another friend stopped by the day before I left with $200 in cash to cover the taxi ride to and from Logan Airport and the hotel.  One parent knew I had been running on a treadmill and lost a few inches.  Without being asked, she went shopping and brought  me  clothes of various sizes and said pick what you want, I will buy one outfit, you can pay me for anything on top of that, and I will return the rest. My bags were packed with a bible, a happy face card from a very special student, scriptures from a friend, and hope.  I was beginning to get the feeling that I wouldn’t need an airplane to get to Boston.  I felt as if I could literally get there on the wings of prayer that were lifting me up.


After an initial assessment in Boston the doctors fitted me with a trial pair of sclera lenses.  These are over-sized hard contact lenses filled with 25-30 drops of solution that creates a liquid bandage over the cornea.  During the course of the next thirty minutes they gradually raised the level of the lights in the room until finally reaching normal.  I could tolerate the light for the first time in 2.5 years.  I cried, the doctors cried, and even some of the staff cried with us.  We were all keenly aware that we were right in the heart of a miracle as it was happening.  I knew at that moment that much of my life was going to return to me. The entire time that I was at the Boston Foundation for Sight I felt as if angels were outside circling the building.


The rest of the week was full or emotional highs and lows at the team of doctors worked to create a custom fit pair of lenses for me.  It also included training in insertion, care, and removal of the lenses.  I have never felt more surrounded in prayer in my life than during that week in Boston.


The prosthetic lenses are not a cure, but like other prosthetic devices allow me to gain much of my life back.  I am hopeful about returning to my teaching career at the end of August.  On June 11 ,2007 Governor  Kulongoski signed Senate Bill 479 into law banning type R metal halide lights from Oregon schools.


At this time four of my colleagues continue to suffer debilitating pain and light sensitivity from their eye burns.  Additionally, one of them has had to have surgery for a Clark’s level 3 malignant melanoma on her cheek which her doctor believes is related to our accident.  Please continue to pray for their healing and opportunity to be treated at Boston.  I can assure you that your prayers have been an integral part of the miracle.  Never think for a moment that a prayer doesn’t matter.  I am humbled and grateful to have travelled on the wings of your prayers. 

Thank-you for being part of my miracle.  I’m so grateful!


Kellie



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This past May 2007 Kellie flew to Boston and met with doctors from the Boston Foundation for Sight. She had come to see if the scleral lens that they made for others with eye problems would help her regain some of her life. It was a long week with a few ups and downs, but when she returned home at the end of the week she was able to walk outdoors without sunglasses for the first time in over 2 years. The lenses are not a cure, but they do allow for a limited return to some normal activities.
 

In the weeks since her return from Boston Kellie and I have been able to do a few of the things we did before the incident in Lake Oswego. Things like go out to dinner walk on Oregon’s beaches and work together in the garden. Simple things to most people, but very precious to us.
 

We have also been able to celebrate the passing of SB 479 banning the use of type R metal halide lights from Oregon Schools. Kellie and I attended the signing of the bill in Salem with Governor Kulongoski. That was a very special moment.

  
As I have said, the lenses made by the doctors in Boston are not a cure, but they do provide some relief from the constant pain and light sensitivity. By holding a liquid bandage against the eye the scleral lens covers the exposed nerve endings and torn surface of the eye reducing the pain and sensitivity. We have been told that until medical science advances, this is our best chance for some normalcy in our lives. We are truly grateful.

  
The Boston Foundation for Sight is a non-profit and accepts donations. They have helped many people with different types of eye problems but Kellie’s case is very unusual. They had never treated anyone with burns from this type of radiation. Doctor Rosenthal had told his staff before her arrival that he doubted they would be able to help her, but he wanted them to give it their very best. When Kellie left to come home after a successful week in Boston the staff and doctors cried, it was truly a miracle.

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Dr. Perry Rosenthal of the Boston Foundation for Sight



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